Chapter 2 of Joshua’s Story
Joshua was born with a Vein of Galen Malformation. He has a malformation in the blood vessels of his brain that steals blood from the rest of the brain.
Joshua’s memory is fading…
He has had 6 strokes, left weakness, epilepsy, intellectual disabilities. He is the eldest surviving child with his condition in Australia. Joshua’s condition is now considered progressive as he began deteriorating in 2012.
When Mette, Joshua’s mum, shared his story and Joshua’s dreams to be a basketball star, I knew immediately that we could help Josh live out that dream in picture form.
On October 23rd, 2016, we took Joshua and his family to a Melbourne United game. Josh shares that it was the ‘memory of a lifetime’. And for someone with a deteriorating memory, this alone shows the power of The heART Project.
SEE CHAPTER 2 of JOSHUA’S STORY HERE
A week later, Joshua is still talking about ‘the best day ever’. His mum was able to capture a little of this on video for us.
This project was made possible due to the contributions of many partners including:
Jacob’s Estate (Workshop Venue)
Art Defined (Framing)
The Wells Family
All the Workshop attendees
Canon 5Diii and 5Div
Canon 24 – 70mm 2.8 and 16 -35mm 2.8
Wacom Cintiq Companion 2
Tethering cables and stands from Tether Tools
Lighting from ProTog (Jinbei HD600’s and modifiers)
Westcott Green Screen from Kayell Australia
EIZO monitors from EIZO Australia, distributed by Kayell Australia
Wacom Cintiqs and Intuos Pros