Joshua’s Story – Boy with Rare Brain Disorder lives his Basketball dream

Chapter 2 of Joshua’s Story

READ CHAPTER ONE HERE

Joshua was born with a Vein of Galen Malformation.  He has a malformation in the blood vessels of his brain that steals blood from the rest of the brain.


Joshua’s memory is fading…

He has had 6 strokes, left weakness, epilepsy, intellectual disabilities. He is the eldest surviving child with his condition in Australia. Joshua’s condition is now considered progressive as he began deteriorating in 2012.

When Mette, Joshua’s mum, shared his story and Joshua’s dreams to be a basketball star, I knew immediately that we could help Josh live out that dream in picture form.

Joshua playing basketball with his dog

View Joshua’s Behind the Scenes Video here

On October 23rd, 2016, we took Joshua and his family to a Melbourne United game. Josh shares that it was the ‘memory of a lifetime’. And for someone with a deteriorating memory, this alone shows the power of The heART Project.

 

SEE CHAPTER 2 of JOSHUA’S STORY HERE

A week later, Joshua is still talking about ‘the best day ever’. His mum was able to capture a little of this on video for us.

 TO READ MORE ABOUT JOSHUA’S ADVENTURE CLICK HERE

Related tutorial – Cutting out with Channel Masks

Cutting out with Channel Masks

This project was made possible due to the contributions of many partners including:

 

The Sebastian Foundation

Melbourne United

Dribbles Burgers

My Limo Melbourne

Shot by Peter John

Triple Scoop Music

EIZO Australia

Wacom Australia

Kayell Australia

ProTog

Canson Infinity

Better Photography Magazine 

Going Gourmet (Catering)

Jacob’s Estate (Workshop Venue)

Art Defined (Framing)

The Wells Family

All the Workshop attendees

 

Equipment used:

Canon 5Diii and 5Div

Canon 24 – 70mm 2.8 and 16 -35mm 2.8

Wacom Cintiq Companion 2

Tethering cables and stands from Tether Tools

Lighting from ProTog (Jinbei HD600’s and modifiers)

Westcott Green Screen from Kayell Australia

EIZO monitors from EIZO Australia, distributed by Kayell Australia

Wacom Cintiqs and Intuos Pros

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